To Amanda: Just thought I’d let you know: Chrome is warning of malware on your site, because it includes content from sadmuffin.net, “a known malware distributor”. People are being warned not to visit your blog.
This is the Strand / Waterloo Bridge junction about an hour after Thatcher’s funeral procession went by. There’s hardly anyone here (even less in the surrounding streets), and I didn’t see any great crowds around Waterloo station either. The only conclusion is that not that many people were here - either because she didn’t mean that much to them, they stayed home from work because of the disruption, or because they were too intimidated to protest. A great national figure she wasn’t (unlike Princess Di, for whom there were vast crowds).
Damn I am in so much pain and nausea I don’t know if I can even type this but I’m trying to distract myself despite distraction seeming to prove pointless.
So before the procedure I discussed and discussed and discussed the kind of anesthesia I needed, using the words heavy sedation. That’s a…
I had conscious sedation for an internal examination a couple of months ago. I can’t remember the drug that actually did the sedation (Wikipedia lists four possibilities), but they definitely gave me fentanyl. I was awake,and can remember being in considerable discomfort at one point - I think I groaned, but I definitely made a noise - and then blacked out. I woke up in the day surgery unit’s ward and felt very relaxed - it felt like the best sleep I had had in ages. The discomfort I had felt did not affect me in the slightest. Unless you have a history of resistance to sedatives that they don’t know about (some people I know online do), there is no excuse for them to get that wrong.
And yes, the unit was called the Day Surgery unit (at Kingston hospital in south-west London). If what I had done was surgery, certainly having a feeding tube inserted through your abdomen is, whatever euphemism they want to use.
This actually happened at my college - we were doing a reorganisation of the union and the two people in charge of it decided that “Students with Different Abilities” sounded nice, while “Students with Disabilities”, the term they were using, presumably didn’t. I spoke to the existing SWD officer who said that the two didn’t have any idea what it was like to be disabled (he is deaf). We got the general meeting to change the name back.
This is an appeal from a quadriplegic named Ananda Bennett, who answered a question I put to her through Tumblr and so I’m doing this in return. She has started a petition so that American students can access the food stamp programme, so that people like her partner Shaun, who was studying while caring for her, can go to college. Ananda has no use of her limbs, so everything she can’t do with her voice and her chin, someone else has to do for her. (I’m giving this publicity so that people can reblog it, and am appealing for American viewers in particular to sign it. It’s my policy not to sign overseas petitions early, because they need to be seen to have plenty of signers from the country they apply to.)
I am so fucking ashamed of my country right now. How is this acceptable? I understand putting DNR orders on people who have specifically asked to not be resuscitated, but this man never said anything of the kind. They didn’t even TELL him or his family. They just assumed his life wasn’t worth trying to save because he had Down’s Syndrome. FUCK THIS SHIT.
After 18 years of caring for a child with profound and multiple disabilities, my family has learned that hospital is to be avoided if possible. We have witnessed countless examples of blinkered behaviour: the doctor who ignores the patient, the GP told an injection could be fatal who gives it to her anyway, the nurse told the patient is blind who asks if she would like to watch a video. Despite life-threatening epilepsy my daughter was ignored for six hours when taken in with a fractured skull – and for nine hours when in near-constant seizure.
Carers know patients unable to talk can be left unfed or thirsty, despite often-greater needs. One friend was rung up to be told her profoundly disabled daughter’s airways had collapsed, yet doctors left her dying until her mother arrived half an hour later and demanded treatment. Minutes later and this little girl would have been one more example of death by indifference.
Mark Neary’s autistic son Stephen was taken from him in 2009 because a local care home (where he was staying for what was meant to be for a few days while his father was ill) decided his behaviour was too challenging. He remained away from his father until late 2010 when a court ruled in his favour, and the High Court awarded his son compensation last month. Now, however, the same council have decided to reinterpret the rules to deny him housing benefit. This will mean he can no longer stay in his home with his son. They live in Hillingdon, west London. Please spread this as it needs more publicity.